Childhood Cancer: Partnering with Patients and Families in Research
This webinar is hosted by AACN’s Research Leadership Network (RLN).
Webinar Details
In this webinar, Dr. Ruccione considers how the obligation to return research results to patients and families aligns with ethical practices and principles. The webinar examines benefits and challenges of how returning aggregate research results are weighed and highlights how the pediatric cancer clinical trials group, the Children’s Oncology Group, has implemented a nurse-led return of results initiative. This module could serve as an exemplar for returning research results to participants in studies and scholarly projects in areas other than pediatric oncology.
Outcomes:
- Describe rationale and potential benefits of returning research results (ROR) to study participants
- Ascertain status of implementation of ROR in the Children’s Oncology Group
- Identify ways nurses can facilitate ROR in their practice setting
Note: Recording of the webinar will be available soon after the webinar airs. Visit AACN's On-Demand Webinars to watch.
Speakers
Kathleen Ruccione, PhD
Professor, Program Director, SON PhD Program
Azusa Pacific University
Dr. Kathleen Ruccione, PhD Program Director in the Department of Doctoral Programs at the Azusa Pacific University School of Nursing, has been a pediatric oncology nurse/health educator over the past 5 decades. At Children’s Hospital Los Angeles, she led the development of innovative programs and services, including the LIFE Survivorship & Transition Program and the HOPE Resource Center for Health Education. Dr. Ruccione received her nursing diploma from the Hollywood Presbyterian Hospital School of Nursing, and her BS and MPH degrees from California State University, Northridge. She completed her PhD in health behavior research at USC. Her dissertation research evaluated organ effects of transfusional iron overload and patient reported outcomes among a cohort of childhood cancer survivors. Her ongoing research interests are focused on biobehavioral issues that affect health and health-related quality of life after cancer treatment, and best practices in the empowerment/engagement of patients, families, and childhood cancer survivors through actionable and understandable health communication. Her recent research has focused on long-term relationships among nurses, health equity for deaf/hard-of-hearing adults, and the return of aggregate research results to study participants. Dr. Ruccione is committed to improving patient outcomes through excellence in the educational preparation of nurse scholars and expert clinicians.
Pricing and CE Credit
This webinar is free to deans, faculty, staff and students from AACN member schools of nursing. All non-member audiences will be required to pay a $59 webinar fee.
Continuing Nursing Education
One nursing continuing professional development (NCPD) credit is associated with this webinar; attendees must be present for the entire webinar and complete the evaluation to receive a certificate of completion.
The American Association of Colleges of Nursing is accredited as a provider of nursing continuing professional development by the American Nurses Credentialing Center’s Commission on Accreditation.